The medical team that tended to her became family. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). "Death is Inevitable. A quarter of Claires life was spent in the hospital. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. Discovery Company. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. However, her illness forced her to leave the platform in 2017. She was 21. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Snap Greene is the alter-ego of 13 year old Claire Wineland. Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. . She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. Claire, who understood the importance of organ donation, was a donor herself. I would like to acknowledge Claire Wineland who passed away last night. A double-lung transplant, when successful, can add years to a patients life. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Check out the death cause, death date, and more facts about the. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. There is no passionate rant to be had here I am just happy and thought I would let you all know. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! The gift of life: Recipient of an organ donation herself, her organs were donated after her death. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. Im grateful for my own head and for all the weird things in it. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). There is no passionate rant to be had here I am just happy and thought I would let you all know. Go enjoy your life. She knew that the call could come at any minute, and on August 26, it did. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. James Watt Cause of Death, Age of Death, and Other Facts! Dedicated daily to memorializing notable personalities. I had to be honest, she once explained. She has a younger sister named Ellie Wineland. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. Menu. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. Its a GO!! When she was unable to create videos due to declining health, the company cut her off. She once escaped from the hospital so she could attend a Bernie Sanders rally. CNN Sans & 2016 Cable News Network. She underwent more than 30 surgeries during her lifetime. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. She wasn't done contributing. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow Jace Prescott died at age 31, too young. Since there was no formal contract in place, she did not have any legal option too. Regarding her nationality, Wineland was an American and ethnicity wise she was white. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. Claire Wineland spent a quarter of her life in the hospital. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Yeager posted a video of herself doing a happy dance with friends in the waiting room. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Cystic fibrosis is a genetic condition with no known cure. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. In 2017, Yeager recalled a conversation with Claire about death. Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. She passed away peacefully, with her parents by her side. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. Is there someone you miss whose memory should be honored? More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. I'm grateful for the chance to keep being a person," she said. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She has a younger sister named Ellie. I didnt expect to have a chance. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Wineland founded the Claire's Place Foundation at age 13. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. @larissaperoux We some cheese balls just cheesing it up. I want to see what happens in life. Claire Wineland's death was caused by stroke. She was a born artist and made her appearance in The Music Man, at around 4 years of age. The Foundation has funded more than 26 families till now. She passed away peacefully, with her parents by her side. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Before signing off, Claire implored viewers to do one thing. 2023 BBC. The medical team that tended to her became family. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. 2:33 PM EDT, Tue September 4, 2018. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Wineland hosted many videos for the channel. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. "It hurts everything inside of me to make this video," she said into the camera. A Warner Bros. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. She took great care to decorate her hospital room so it felt and looked like home. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Founded a charity to help others suffering from the disease. real family is great. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. This time, she was raw and allowed herself to cry. I'm not an innocent and I'm not a child," she wrote in March. I'm willing to deal with anything.". The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Claire Wineland was known for her positivity, warmth, and humor. Menu. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. pic.twitter.com/BsTEFmquR7. She founded her own company at 13. Your email address will not be published. She did. I want to see where it goes. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Really. I would like to acknowledge Claire Wineland who passed away last night. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. But last month, as . Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. The family received immense support from friends, and community. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. Read about our approach to external linking. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. Submit an Obituary. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The nine-hour surgery went well, and her mother reported that the lungs were working great. The years of telling myself I can do it on my own are over. My parents are divorced. Im not an innocent and Im not a child. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. I didnt realize how much I didnt expect to live this long. Who is Claire Wineland? Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". She watched one of her doctors squirm as he gave her the safe-sex talk. Given the severity of the stroke and Claire's advance directive, it became clear that it was time to let her go. "None of it spooked me," Claire said afterward. [11], On August 26, 2018, Wineland underwent a double lung transplant. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Who was Ukrainian minister Denys Monastyrsky? I'm grateful for the chance to keep being a person," she said. She had a popular YouTube channel, gave No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. The Plain Dealer Homepage. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. She inspired countless people, invited no, demanded honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit. A supportive space for people & families affected by Cystic Fibrosis. Why a terminally ill young woman has changed her mind about living. She wanted to help other affected families too. [4], Wineland was born with cystic fibrosis in Austin, Texas. Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. You can suffer, you can experience what its like to feel like a human beingall those messy and gross emotionsand yet you can make a life for yourself that you are very, very proud of., What people said about her: In Claire fashion, she is an organ donor. Wineland was moved by the communitys support when she was in coma. Menu. She listened to the risks and the long list of side effects and emerged unfazed. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. You can have a painful life. [3] She joined the Philips "Breathless Choir" as a soloist. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. Sympathy . Im grateful for the chance to keep being a person. She watched one of her doctors squirm as he gave her the safe-sex talk. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Claire Wineland died at age 21, too young. She was a wonderful person and the world . Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. A self-described goofball, she usually engaged people with humor and optimism. Notable quote: I do these talks to make a point. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. We invite you to share condolences for Claire Wineland . Read about our approach to external linking. Then came the call that offered new life. Search by Name. She loved every moment of her life, even those days when she was in hospital. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. "It's a GO!!!" At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Read about our approach to external linking. Shed also get a butt. Her foundation said she had died peacefully, surrounded by family. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. She has a younger sister, Elanore Nordquist. . Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. She had a popular YouTube channel, gave The cause of death was a massive stroke she suffered soon after the transplant surgery. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. Youll be missed deeply. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. 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